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Why does it seem that carers are being totally ignored? - Page 2 - Carers UK Forum

Why does it seem that carers are being totally ignored?

Guidance on coronavirus and a place to share concerns and support
True we the Carers are being ignored totally.
I am a Full Time 24/7 Carer for a parent with Tracheostomy and now with Pallative Care. HOSPICE AT HOME, as mom does NOT want to go to hospital anymore.

Due to COVID -19 I am going out shopping, running errands with no assistance. And having to leave mom home on her own , considering she is Pallative Care Patent.

I have Autoimmune Disease which are non curable.

I can't get shopping done online any more due to this crisis so I physically have to go out myself.

Having to constantly worry if I am going to see my mother in good state.

I have NOT received one of those letters.

So, yes we are ignored.

Anila G.
Anila, the doctor should have arranged NHS Continuing Healthcare for you, free help and support at home, as needed. Ring the doctor asap and ask them to make a Fast Track Application for you. Support should be arranged in 48 hours.
Is mum getting Attendance Allowance, or PIP?
Do you have a hospital bed for mum to make nursing her easier - the GP should sort this out too.
Anila, this must be very distressing. I do hope that your mother is getting all the necessary equipment, not only hospital bed but also air mattress, slide sheets, hoist or sit to stand aid, commode and chair or recliner with pressure relieving cushion, as appropriate for her needs. Those are some of the aids that my mother received and were supplied through the occupational therapist and district nurses.
Anila

You have enough on your plate without having to worry about shopping.

Have you checked Facebook to see if there is a Covid Mutual Aid group in your area that can help with shopping.

They don't charge for their time a volunteer does the shopping for you.

Also check out with your local authority as well.

There's no way you should be having to go to the shops.
It's shocking how many stories I've heard or read from people who should have received a shielding letter but haven't. I'm not sure how it works in England, but here in Wales if you believe you should have received a letter you're being advised to contact to your GP and discuss the matter with them. I'm truly shocked that somebody with Autoimmune Disease hasn't received a letter.
As we heard from Dean, his doctor classified him as "moderately highly vulnerable ". Are they making up categories to rule people out? Typical.
Seems that Scotland is the only nation in the UK that is so far prepared to recognise the extra pressure carers are under at the moment as they're preparing to give all carers in Scotland who are claiming carers allowance a supplement payment to help cover any extra costs they may have incurred during the lockdown:

The Scottish Government will pay an extra £19.2 million to unpaid carers next month in a bid to support them through the Covid-19 crisis – acknowledging that they are “doing even more right now”.

The new legislation will see 83,000 people who care for someone else for 35 hours or more a week and who receive Carer’s Allowance get an extra £230.10 in June.

Shirley-Anne Somerville, Cabinet Secretary for Social Security and Older People, said the Carer’s Allowance Supplement was being introduced “to recognise the important contribution unpaid carers play in our society”.

She said: “They provide vital support to family, friends and neighbours. Our collective efforts to slow the spread of coronavirus will see many of these carers experiencing additional pressures, particularly financial, right now.

“The payment will benefit carers who are on low incomes and already have some of the most intense caring roles, providing at least 35 hours of unpaid care weekly to a disabled child or adult in receipt of higher level disability benefits.

“This additional payment would be an acknowledgement to carers that we know that they are doing even more right now, and we thank you.”

Unpaid carers are under extra pressure, providing more care and not getting breaks

The Carer’s Allowance is paid to people who care for people with disabilites or other health issues full-time with earnings of £128 or less per week (after tax, National Insurance and expenses). It can be claimed by people providing remote care during the Covid-19 emergency too.

The supplement is the only payment of its kind in the UK. In the rest of the UK Carer’s Allowance is the lowest-paid benefit at £67.25 a week, with campaigners calling for it to be increased by at least £8.85 to match Scotland.

The payment due next month, a total of £460.20 including the extra cash injection from the proposed supplement, will go to people who were receiving Carer’s Allowance in Scotland on April 13 earlier this year.

Overall carers will get an extra £690.30 on top of the standard Carer’s Allowance this year.

Helen Walker, chief executive of Carers UK said: “This is an important act of acknowledgement for Scotland’s unpaid carers – the majority of whom have been providing even more care for their older, disabled or seriously ill loved ones during the pandemic. Many unpaid carers in Scotland will appreciate being recognised and this extra money will help them meet some of the extra costs they are facing during the outbreak.

“Now, the UK Government needs to do its part to ensure the rest of the UK’s unpaid carers receiving Carer’s Allowance – and providing upwards of 35 hours of care a week – also receive a coronavirus supplement. This is imperative to show carers that the Government recognises the additional financial costs that they are facing at this time.

“Caring Behind Closed Doors, our research into carers’ experiences during lockdown, showed 81 per cent of unpaid carers had extra financial costs as a result of the crisis. At the same time, unpaid carers are under extra pressure, providing more care and not getting breaks.”
Definitely here in NI we are being ignored also. My husband and I care for our two teenage children with ASD, my daughter also has significant mh issues. We are both working from home (part-time for me and full-time for my husband). Juggling it all with school being closed has been pretty exhausting. To add insult to injury I lost my Carers allowance when I returned to work, even though I only work 12 hours a week (as I was slightly over the threshold). We have had absolutely no support from the gov. My daughters mh care has now been replaced with a quick phone call and therapy has been “postponed until further notice”.
Dianne

I can can understand how you feel I look after my two boys one with autism and other needs and the other with a learning disability.

Since everything closed down my workload has gone up significantly.

That's a shame you have lost your Carers Allowance I thought I read somewhere that if you earn over the threshold you can still get carers if you put a certain amount in a pension..because I do not know if that is factually correct could it be worth checking things out with carers uk helpline.

If either of your children are over 18 have you applied for UC, for them?
Anila

Have you spoken with her trach nurse or not? There should be at least one phone number on a letter for you to call. Alternatively you could try emailing her ear nose and throat doctor for help. Ask them about qualifying for the NHS continuing healthcare scheme and request a fast track application in case.
In terms of claiming state benefits, is she on pip and esa? They are the two most important ones to apply for. Since she has a open tracheotomy, she should be eligible for the enhanced rate of both. Citizens Advice can help you with this. Give them a call asking for a advisor, take a look at their website or email them.