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Consultation Response

Who Cares? consultation response

15 March 2013

The debate about the future of adult social care is of great concern to carers and their families. While understanding the need for change, we are concerned about some of the assumptions in the consultation and the direction of travel of health and social care provision.

Key points from the response:

  • The consultation understates the role of carers, almost downgrading it to the level of befriending, rather than recognising it as the full time, labour intensive commitment it is for many people.
  • Carers already supplement, and in some cases replace, the role of paid professionals. There must not be any rebalancing of services that increases their burden.
  • The consultation makes an assumption that families are willing and able to take on a caring role, which is not always the case. 
  • The consultation paper does not make enough reference to the wider policy environment of welfare reform and Transforming Your Care, which will have a major impact on adult social care provision. 
  • "Carers are the glue that brings things together and gives other people a life".
  • While people have a responsibility to look after themselves, many health crises are the result of something unforeseen such as an accident or a complication arising from a long-term condition or disability. Both of these circumstances cannot be 'provided for' in advance.
  • The tone of the debate is encouraging a public perception of some people being undeserving of care if they lead an unhealthy lifestyle or haven't enough savings to pay for their care. People need protection and not stigmatisation.
  • For many people with disabilities and older people the 'home' in which they aspire to live is not the home of a parent or adult child. People should be supported to live independently where they want to, without them feeling they are a burden on their families.

Download our full response below

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