Unfortunatley, I have had a lot of experience in this, knowledge of drugs, fighting the system, consultants hostility in listening to carers, oh you name it, I think we have been through it, and yes, it takes its toll let alone looking after someone with this kind of mental ill health and plus if they have physical disibilities too.
I am willing to answer from my experience anything if the mgrs of this forum allow. I don't name names, lol and I only give advice which is practical. I find the links that have been given as excellent, but if an emergency arises and someone needs help in coping with a particular problem we need to act fast.
The worse I come up against is not being listened to, does this happen to you? or should I rephrase this, they listen, but don't digest it at times. Mental health is the worst for carers, as its harder to 'prove' that your patient is needing to be hospitalized, then they have no beds, then when they do, its either too far away or too late and you've managed thru the worse of it.
It takes its toll on you, no sleep, listening to their grandious ideas, thoughts and its all powerfully real to them, its makes night time non existant, you loose friends because of it. You loose your self worth at times talking to 'proffessionals' who know better than you your pateint who you have been looking after for so many years and they know 5 minutes? am I right?
Yes, we know, my kids are in their twenties now, and what I would love to be able to do is get involved in speaking to mental health proffessionals to 'educate' them that carers have rights to, and to be listened to, no decisions made BEFORE meeting with the carer and discuss things and options.
If you need to chat, I am here