I have a 22 year old son with Downs Syndrome and Diabetes. The Diabetes causes more of a problem than the Downs. He is unable to attend the Social Services Day Centre after issues with his Diabetes last year, which I put in an official complaint about.WE have reached a very successful stage 3 complaint, but during this time, I have had to work really hard with my son's Social Support worker for her to understand his Diabetes needs, as staff are not trained in medical awareness.
Now,and it seems a very big co-incidence,I have been informed that my son will probably be transferred to a new member of staff, so we will have to start all over again. Meetings for direct payments, ILF, annual reviews will all take me, his main Carer, so much more time than if he kept his Support Services manager. My son has to test his blood sugar before each meal and his support staff have to calculate his insulin needs according to what his blood test reads, his estimated carbohydrate intake at that meal, and his expected energy output(exercise!) after the meal. My son is very unhappy at the idea of changing his support worker, as soon as we have had this satisfactory result with the stage 3 complaint.THey haven't even asked if he wants to meet the new worker, they are just bringing her along to meet me.I think they have forgotten about clients rights, they don't seem to have any at all.
I would like to know if we are entitled to ask to keep the former Support Manager, and if I can insist on them making an appointment at a time when my son is at home?
Thank you for any advice.