This is something which we are going through just now.
I found these next links very helpful
http://www.publicguardian.gov.uk/decisi ... isions.htm
Its a minefield though trying at times to interpret the rules and regulations to your own circumstances.We are using a local advocacy service and they have been a tremendous help.
I am just realising more and more now how you should not just assume
that you will always be allowed to have a full say in a loved ones life especially if they have mental health/learning disabilities issues.
CarersLine can offer advice on any issue to do with caring and disability such as benefits, hospital discharge, employment issues, making a complaint, getting a social services assessment and much more.
The service is free. Unfortunately the service is currently only open for 2 days a week. However we do have an answerphone service if you leave details an advisor will call you back.
Telephone 0808 808 7777
Open Wednesday and Thursday 10am-12pm and 2pm-4pm
Also if you click on this next link,then scroll half way down, you will find information about other National organisations.
http://www.carersuk.org/Information/Fin ... anisations
Hope this is enough to keep you going for now.
By the way,welcome to forum