No one Cares about Learning Disabilities/ early age Dementia

by **rosemary** » Mon Jan 19, 2009 2:49 pm

Good going Jeanette...at 147 now.

Put the current total on your thread on PRTC to bump it back to the top again :wink:

by **Jeanette** » Mon Jan 19, 2009 4:17 pm

Its 155 now Rosemary and i know some more are coming, but not the number.Because of the petition, have had a Carers champion contact me and she is arranging for a human wrights solicitor to talk to us. the petition was also brought up at a carers consultation meeting this morning where the Service director of younger adults was present. hope we are not just into talk again ...I want action!!!

by **Pete the Paint** » Wed Jan 21, 2009 1:39 am

I've only just found this Jeannett, so my signature is now added!

The very best of luck with this,

pete

by **rosemary** » Wed Jan 21, 2009 2:08 am

Pete the Paint wrote:I've only just found this Jeannett, so my signature is now added!
The very best of luck with this,
pete

You took it to 186 Pete,thanks.

Only 14 to go for the 200 mark

. Well done Jeanette.

x x

by **Jeanette** » Wed Jan 21, 2009 10:20 am

It is getting closer Rosemary,and a few more have said they will sign it for me.187 have signed as I write. Have been informed a big consultation with Carers of peopl with learning disabilities is on the cards!! I wonder if it is to do with the new valuing people which has just come out? I have to take any opportunity I can find to raise awareness ,but it seems disgraceful that I should have to go to such lengths!!

http://petitions.number10.gov.uk/uk-ead-ld/

Only 13 to go but someone said ..the more I get the more notice will be taken!!
Have you noticed NO ONE on any board supporting me so well, has actually come forward and said they have the same problem? I am told it is very rare hense nothing out there...but at the same time ..this terrible disease is coming ..as particulary people with down's syndrome get older /live longer. Have also read that other people with L/D have a two per cent chance more of getting it than the average person out there!!
am still on a very long learning curve!!!

by **Jeanette** » Wed Jan 21, 2009 10:41 am

Forgot to say thank you to Pete!!!
Thank you so much Pete ..Really appreciated!!

by **Jeanette** » Wed Jan 28, 2009 4:38 pm

An update if you are interested.
My daughter has another social worker number 5.)Hasnt contacted us yet .
Through one of the sites I have been trying to make aware of the probs,heard from a Lady with info that sounds suitable to us.Am not getting too excited incase it isnt what we require OR The Powers that be Wont fund it!! So early days yet,but have my fingers crossed.

by **rosemary** » Wed Jan 28, 2009 5:23 pm

Jeanette wrote:An update if you are interested

Of course we are interested.I know I am not the only one who checks how your petition is doing.

I hope the avenue that you are trying now works out.Keep us posted please

x x x

by **Jeanette** » Thu Jan 29, 2009 2:24 pm

Had an Email this morning requesting us to attend a meeting of the Health Overview and Scrutiny committee in The Council House discussing Dementia. They want us to talk about our experiences!!!! Am so looking forward to it!! Only problem is that we need a few hours of care for our daughter. Will see if we can get it, but think we will !!