Norrms Blog

[poppett]

One day at a time................

xx

[Myrtle]

((((((((((((((((((((((((((((((((hug))))))))))))))))))))))))))))))))))

[norrms]

Thank you my friends, thank you so much xxxxxxxxxxxx

[norrms]

Hiya all, just to share the news that after yesterdays meeting with Tor 2 (Please click on link http://www.tor2.co.uk/ ) they have agreed to put the information we gave them into their ("Toolbox Training) which means every employeee "" ALL 365 of them !!!!!!! will be Dementia aware in the next couple of months or so. This means that the eyes of all all those on the gardening, cleansing, road sweeping and recyclying will be able to spot somebody if they are in distress regarding Dementia. They all have two way radios!! so this could actually save lives !!! I am so pleased !! Right !! back to my holiday LOL LOL Norrms and family xxxxxxxxx

[Myrtle]

Well done Norms

[Brindleboy123]

As always Norms, very thought provoking. Thank you for your honesty and sharing your feelings and fears with us.

Bell x

[norrms]

Hiya all, just been told i have made the Dept of health Govt website with a blog i wrote, i am so pleased we are getting thw ord out there my friends, please click on the link and look down to your left, best wishes, Norrms and family
http://dementiachallenge.dh.gov.uk/

[malc]

go for it buddy,well done!!!!!!!!!!!!!!!

[norrms]

Thank you my friends xxxxxxxxxx

[farmer1961]

Norrms you're a trail blazer!

[norrms]

‎24 Hours!

Someone once said “What a difference a day makes” and how true that is! Just 24 hours ago, there I was, blogging away on the computer and making phone calls trying to sign business’s up for the Dementia Alliance, the next, a complete wreck!! Why? here`s WHY!!

A conversation about holidays began between Elaine and me, and I happened to mention I was so relieved when she said a while ago after the last fiasco up north, that we should try away days for the time being. I knew straight away by the look in her beautiful eyes something was wrong. Slowly and so wonderfully she began to tell me because of recent events with our family there might come a time when she would have to go back to Bolton to visit, and I will have to have someone come in to look after me. I couldn’t believe what I was hearing!! My heart sank so low I thought it was going to start pouring out of my toes. My hands and whole body started to shake and I was really having trouble understanding what else she was saying, this wasn’t good.
Now I know we have touched on the subject of CARE before, but never quite like this, the sheer thought of going longer than a few hours without seeing Elaine absolutely petrifies me!! We have NEVER, like many of us, ever been apart for more than 16 hours in all the years we have known each other. That’s bad enough in itself!! But the thought of this happening now, when I have dementia fills me with a worry I have never felt before!!! I pride myself on saying the only things that ever frighten me are my God and MY KIDS!! But this is so very different. Elaine tried to calm me down by saying “It might not happen for a while yet” but just the sheer suggestion of it made my heart race, my pulse explode through my wrist and my legs go week.

It’s like I am living two lives!! It’s like I have two brains!! One telling me that this needs to happen and it could possibly do the love of my life the world of good, and the other saying “I CANT SURVIVE ON MY OWN WITHOUT HER!!!!! I know at this moment in time, there is not ONE person who could take her place and no matter how well I know them, or no matter how many times I am going to hear “It’s ok, he will be ok with me “ IT just isn’t going to work”!! I couldn’t believe how bad I felt the last time when I had to leave my routine and step out of the Devon Border for more than one night!! I have it in my mind I can cope with one Night!! I don’t know where that’s come from, but I find that comforting. Considering our family live in Lancashire, this is not going to be an option. I also thought that after feeling like this last time it would be just a one off, but now I know it’s not, and the fear I feel about travelling a long distance for so long is so very real!!! For the first time for as long as I can remember, I don’t know what to do or how to react!!!

I cannot tell you how much I HATE THIS DISEASE at the moment!!

I cannot begin to put into words how much I despise this illness and ALL it entails!!!

HOW DARE IT make me feel like this and force myself and the love of my life to be apart for longer than we both wish too!!

WHO THE H**LL DOES IT THINK IT IS!!!!

When/if the time comes when this happens I only hope I am able to tell you all about it, as I hope, as with this, it helps people to understand THE EMOTIONS/FEELINGS AND MANY FEARS THAT MAY PASS THROUGH THE MIND OF SOMEONE WHO HAS DEMENTIA

As always, your thoughts on this would be appreciated,
Best wishes, Norrms, Elaine and family xxxxxxxxx

[norrms]

Dementia : The Quiet Times

As I sat myself down next to Elaine on the settee, I gently held her hand and asked “Am I getting any worse? I hadn’t asked for a while (as I am aware of anyway) and as she leant over, took hold of the remote and switched the TV off, I knew we were in for one of our “Chats”
“Why do you ask? She says. “Well” “I started, I seem to be having a more of a problem remembering what happened yesterday ECT, or even some things we have done today” I replied. It was at this point, my “ANGEL” squeezed my hand a little more, smiled that beautiful smile of hers and nodded before mouthing “Yes” But quickly added “But not much” thankfully. Elaine then went on to say actually it was because she noticed I had become a lot quieter and wasn’t as enthusiastic about doing things as I once were.


Now before anybody jumps in with the jokes, me being quiet it quite worrying!!LOL Elaine explained that lately I had become a little more withdrawn and not as talkative as usual, which really is unusual for me. The reason for writing this new blog is because of exactly this, being Quiet!! As I write this we have just come back from a ride out around “The Bay” and twice or three times Elaine asked me if I was ok because I was off in my own little world, miles away and completely deaf to what was being said to me. I have written before about being in some sort of “Catatonic Trance” and apparently this is quite common in people with Dementia. It’s really weird because all I can say is, It’s like being there, but not being there” I can observe a fixed point in time without blinking for minutes on end and yet I can do nothing to snap myself out of this, and its only when Elaine gently brings me back to “Real Life” do I have any memory of doing this, and yet can hear nothing during this time!!


Is this what happens as the Stages pass by?


Do the Trances become longer and longer until there will come a time I can’t be “snapped” out of them?


Why can’t I hear my Angel Elaine or anyone else when I am in this “Status?”


If these continue to happen, how will I ever be able to speak to people so they can hear my story?


Will you tell my story for me?


Will you ???????????

Norrms 18/08/2012

[Myrtle]

Yes we will Norms, all the people whose lives you have touched all across the nation. xxx

[charles47]

And we have here the record of your story, Norrms, to help us.

[ladybird]

Your story will never be forgotten because you have touched too many people for us to let that happen.

It will continue to raise awareness always due to your strength and selflessness.

xx