Hi, I thought it was just me but registering here has changed my thoughts entirly with regard to being alone, on the way I have been treated over the yrs by the 'proffessionals', saddens and appauls me greatly, because these are children that nobody seems to want to help and especially by the ones that CAN help. Only a little while ago I sent below to CARERS questions because not only have we as parents of these children had such a hard time with our children but we also have the impossible job of getting, advice, support and believed.
Thank you for your advice, you got back to me very quickly, thank you.
I have already approached my local Authority some 8 yrs ago and for doing so I have been 'dragged' down the protection route 3 times now for having bipolar. It took me 4 yrs to get an assessment completed for being a carer, this was completed Dec 2008, I refused to sign it as it was all wrong, to date I still await this. All their assessments are always wrong. My son is now classed as a LAC child even though I was the one that fought for respite for him for 2 yrs, my son is at the moment having 1 night overstay per month but has been assessed as having 2 separate respite carers on alternate weekends but this is still 2 overnight stays which is 1 night every other weekend. My son attends a special school in West Kirby (out of county) and I managed to get this for him. He has a proposed statement, which I fought for for 4yrs, I completed and sugned this just before Christmas 2009, they authorities lost the first completed proposed statement and I am still awaiting the final, all in all this has taken 5yrs. My son is not allowed to go to after school clubs (as in cubs, scouts, dancing etc) he has amongst many other disabilities severe behavioural problems for which he is highly medicated but still these clubs refuse to except him and that is with myself or a sessional worker attending with him. Barnardo's have refused to help him, Crossroads have just turned him down, where they were to come into my home and sit with him for 2hrs an evening, once a month to enable me to attend a support group. My son is a brilliant street dancer, self taught but he cannot access this kind of activity and even the group which is run by the authority for disabled children won't accept him as the authority do not see him as disabled, even though the Disability Rights Commission have stated he should most definitely come under the category of 'Disabled'. We as a family have been subjected to the most horrific abuse from neighbouring children and their parents because my son is different and even Social Services, the police, NHS services etc have mentally abused and neglected him and us as a family. Trying to get some sort of justice up to now has been impossible and the abuse continues.
I do apologise for this rant, just a low day today.
Thank you anyway for your advise and thank you to all carers support for the priceless presents as without their support I know I wouldn't be here today to carry on the fight for a better future for my son.
All the best