Review Meeting - what to expect?

Share information, support and advice on all aspects of caring.
I have a review meeting with our social worker, O/T and a representative from the support company who provide my husband and I with his support package early next week. This is the first review we have ever had and although I have met our social worker (albeit a handful of times over the last 16 months), I see his O/T weekly and have never met the support company manager... I feel a little overwhelmed and outnumbered!

I'm only guessing, as I don't know, but I suppose that this meeting is to give feedback on my husband progress to date and to identify any shortcomings there might be.... but I have have no idea!!!!!!

I really would like to be at least a little prepared for this meeting, so looking for advise please.
They will want to know if everything is going OK, if needs have increased or decreased. Nothing to be worried about, but if you don't like meetings, write down before hand anything you would like to discuss.
Thanks BB. I don't like meetings so will try and note some thoughts down beforehand. Its difficult to try and preempt what might be said, I do prefer to have some sort of idea of what we are going to talk about so that I can think about it beforehand. However the social worker has said that we just have to take it as it comes.
After 16 months it seems appropriate for them to review the care package and to include you and your husband in the review. Have there been any changes to your husband's health that might warrant a modification to his care plan?

I wouldn't worry but I would make some notes ahead of the meeting regarding your needs, what is working and what might be done to improve your husband's care. That way you would be prepared for when they ask if everything is going well. You'll have your notes and you can talk to them on a more level playing field!

In my mother's case (I'm a newbie here with only a couple of months care experience) the care worker was concerned if mum was weight bearing or not and the agency called a meeting with the council's of to review.

I suppose the council and the agency may be negotiating their contractual arrangements. You could always ask the social worker the reason for the visit. It shouldn't be a secret. Again, after 16 months a formal review is probably long overdue.
After 38 years of this sort of meeting,I now take the lead at reviews for my disabled son.
Very often I say "While you are here I want to discuss food, money management..." because otherwise there is a real danger that they will waffle on for hours and you'll never have an opportunity to discuss what you want.
They often won't say at the beginning that the meeting can only last an hour, and will abruptly bring the review to an end because they have another appointment looming.
Remember, that they are there to support you and your husband by arranging what you both need, so start by thinking about what needs have gone up and what you struggle with most.
I agree with bowlingbun. They are serving you and your husband. They need to listen to you.

I'm finding that there are multiple equipment options to assist in activities of daily living (ADL ) I'm preparing for the second discharge of mum from hospital in two months and have received different types of chair, transfer device from the second occupational therapist than I did from the first one - both at the same hospital.

My point is that if you don't know what's available you won't know what you're missing out on.

Perhaps you should make a list of the ADLs your. husband needs help with and ask if there are devices the council can provide to help. You didn't tell us your husband's condition. Perhaps if you shared this with us here, the forum users could offer some suggestions as to what might be done to make life easier for you and your husband.

As 'bb' says, 'information is power'..........
Hi

Husband had a ruptured aneurysm so has left him with cognative impairment. His short term memory is dreadful so someone needs to be with him if only to make sure he doesn't wander off etc. He also needs help with almost all day to day living activities - for example he can wash himself but needs constant promoting throughout as he can't always sequence the activity. He can dress himself but isn't always able to choose appropriate clothes for the weather etc. He has problems with road safety awareness (something the O/T and support are working on). On the one occasion he did leave the house (without me knowing) ... he didn't know where he was and how to get home.

He has little to no appetite for things other than cakes and sweet (which are no good for his diabetes - we do have a dietician but she is at a loss now as she has ran out of suggestions regarding how to encourage him to eat a balanced healthier diet). If left he wouldnt eat or drink and has been identified as being at high risky of becoming malnourished and dehydrated if not monitored.

Everyone who is coming next week are already aware of these issues. One thing that I do want bring up is the fact that the support company keep changing the parameters of their support. I have already mentioned this (in another post) that they have now decided to charge us for petrol when taking my husband out. They also said at the beginning of their contract with us that they were here to support both of us, when I asked them to support me to attend a hospital appointment for myself (hubby wanted to come with me, but as I was having a MRI scan I needed someone to sit with him) they basically said "well actually we're not here to support you"!!!!! Apparently that's a grey area of the support package.... I've already said to the social worker that this needs to be black and white as undoubtedly I will need to attend more hospital appointments in the future.
You should also have a Carers Assessment which gives you regular time off from caring and help when you have hospital appointments.
My son was brain damaged at birth. Fortunately he is fit and active but we have had to accept that his brain has some "black holes". However much he tries, there are some things which are simply beyond him, like putting all the letters together to sound out a word. Acceptance has been a long road for us, and sadly many professionals don't understand brain damage. I've had to explain it many, many times.
Are you getting highest DLA/PIP/AA? Claiming exemption from Council Tax on the grounds of severe mental impairment?
I'm supposed to have a carers assessment but still waiting to here from that department.

I was supposed to have had respite in July. The unit he goes to is the rehab unit he was in before he was discharged home, and they don't offer respite so the last couple of times it has been a case of "we have the bed so it's not a problem." Unfortunately in July they were full and don't expect a bed to become available for the foreseeable. I've been emailing them on a 4 weekly basis just on the off chance. The social worker did get a list of approved respite units from Headway unfortunately all have said that they are unable to offer respite. The social worker says that it would appear that as it is specialist care they would prefer to have residents who will be there 12-18 months instead of 7 days. Although the manager of one unit has agreed to look at my husbands assessment. Our OT says that we are an unusual case as she has found that most people in my husbands position are in full time care and not living at home, and that's why there's this problem with respite.

I've emailed someone from the advise line here at Carers UK and the lady is working out what we should be claiming for. We do claim PIP ESA and have a discount with council tax, but the lady I contacted is going to do a full benefits check for us.
Our CUK advice line is wonderful, made me £50 better off, so I'm always happy to sing their praises. If most people with your husband's problem are in residential care, then that means you should be getting LOTS of help at home.