Patient Power re Alzheimer's drugs ruling

Discuss news stories and political issues that affect carers.
High Court ruling on Alzheimer's drugs may have global implications for patient power

LONDON, Wednesday August 8 2007- Patients are no longer happy to settle for what their doctors or their health provider tell them is good enough. The recent unprecedented High Court challenge of the UK government drug watchdog the National Institute for Health and Clinical Excellence’s (NICE) decision not to fund treatment for patients with mild Alzheimer’s disease is a prime example of increasing patient power.


The few available Alzheimer’s drugs that can delay the progress of the disease are not available on the NHS for patients in early stages of the disease, and the patient group Alzheimer’s Society together with the drug makers Eisai and Pfizer are challenging NICE’s decision. If the Court’s ruling, scheduled to be announced on August 10, quashes NICE’s decision and forces it to reconsider the status of Alzheimer’s drugs, it will have huge implications not only for Alzheimer’s sufferers in the UK, but also for patient empowerment in the UK and worldwide. According to Datamonitor senior pharmaceutical analyst Dr Tijana Ignjatovic*, this could be a pivotal moment that sets a precedent that would undoubtedly motivate other patients to start legal action over other refused drugs.
Patient power is rising

Patient power is the patients' will to be involved in decisions regarding their healthcare. Ever since the success of the US HIV/AIDS patient advocacy groups in the eighties, patients have been motivated not to settle for second best but to demand access to the best possible treatments available. The ease of access to healthcare information via the internet has only made this process easier, says Dr Ignjatovic. “Patients are now in a position to find out information about new treatments from sources other then their doctors.

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Let's hope common sense prevails.

We've seen some from the judges.
Campaigners have failed in their High Court bid to force the NHS to fund Alzheimer's drugs in people with early-stage disease.

http://news.bbc.co.uk/1/hi/health/6939950.stm

Matt
Thanks Matt.
What unbelievable news. I really don't know what to say except it is unfair that people will not be able to get help.
Wendy
Let's hope common sense prevails.

We've seen some from the judges.
I forgot one important point: "in the past."
Also
here

and there is a picture of a member from the Alzheimer's group in the paper nut I could not find it on line.