My Story and new Petition on the No.10 Downing Street site.

Discuss news stories and political issues that affect carers.
I look after my 78 year old mother who has chronic arthritis, emphysema, epilepsy, history of 3 strokes, 1 heart attack and is now becoming slightly dementured.

On top of that, I have a Brother (aged 53) who is self funding in a Private Nursing Home. Rod had a massive Brain Haemorrhage on 24th May, 2005. As a result of this, he has been left paralysed, doubly incontinent, peg tube in his stomach for fluids, constant pain due to Thalamic Pain Syndrome, suicidal, epileptic, constant skin irritation and is on over 15 medications a day. He has also had many infections including MRSA (list not exhaustive). He has been refused Fully Funded NHS Continuing Care because Central and Eastern Cheshire Primary Care Trust seem to think that his main need is a social need and not a nursing need. What absolute rubbish.

I am now fighting the NHS to get the funding he should be getting under the law of the land. Unfortunately the battle is frought with endless and deliberate delay, procrastination, prevarication and sheer bloody-minded intransigence on behalf of the NHS.

The Website can be seen at: www.continuingcarecampaign.info

The Petition can be seen at]http://petitions.pm.gov.uk/Continuing-Care/[/url]

I would be more than grateful if you would have a look at the website and sign up to the petition.

The Core Principles of the NHS can be summed up as follows: To provide care which is free at the point of need, meets the needs of everyone and is based on a patient's clinical need not their ability to pay.

Tony Blair said at the Labour Party Conference in 1997 that he didn't want his children brought up in a country where pensioners had to sell their homes to pay for long term care.

Since then approx 700,000 homes have been sold to pay for care.

This applies to sick people of all ages. These people have paid taxes and national insurance all their lives, then suddenly they get taxed again when they become ill by funding their own long term care. What an absolute disgrace!!!!!

If you have an illness or disability you are entitled to Fully Funded NHS Continuing Care under the National Health Service Act 1946/48 and the 'Coughlan' Judgement in the Court of Appeal 1999.

Kind Regards,

Stephen (Johnson).
Hi Stephen,

First of all I would like to welcome you to the forum.

Secondly I would like to thank you.Your posting has really touched a nerve with me this morning.It was mainly whilst watching the video links and listening to the music.On the old forum I had already said how the song you used was my favourite.

Each carer is unique in their own way,they have had to be,but after reading your posting and signing your petition I started wondering...............Just how many out there who have no one in their corner.If a law exists ,it should be in force always, for anyone who needs it,not just brought out now and again when needed to do battle.

You have my respect and admiration for all that you are doing Stephen and am sure the forum will benefit from your experiences.

Take care
Rosemary
Dear Rosemary,

Thank you for your kind words. Unfortunately there are so many people out there who don't have anyone to fight for them. There are also the ones that still trust the NHS and Social Services or are worn down by the endless and deliberate delay, procrastination, prevarication and sheer bloody-minded intransigence of these so called 'Public Servants'. Hopefully one day we can change things.

Kind Regards,

Stephen (Johnson).
Dear Stephen,
What a moving and also brilliant website you have made.
I am afraid to say I was in tears and what is happening is so wrong.
take care
Wendy
Have I got your permission to add this to my website to share with more carers?
Dear Wendy,

Please do. I would be delighted.

Kind Regards,

Stephen (Johnson).
Hello Stephen

Welcome to the forum!

Well done on producing such a wonderful site. It made me very emotional and admire your effects on behalf of your Brother and others, great work!

So glad that you have joined us and hope that you will find the forum and site supportive and informative.

Take care
Maryann x
welcome Stephen
Your video was heart rending and I immediately signed the petition.
Thank you for sharing your story and campaigning for the benefit of so many people who are unable to do so but must be in similar circumstances.
Take care
Love Kaydee xx
UPDATE ON PETITION.

DAY 26

First of all, a very big thank you to all who have signed the Petition.

In the popularity stakes, we rank 186 out of 5911 petitions with 985 signatures. Don’t forget to make sure your name is there and pass the link on to all your family, friends and work mates. http://petitions.pm.gov.uk/Continuing-Care/ Closing date 20th August, 2007.

Kind Regards,

Stephen (Johnson).
UPDATE ON PETITION AND SOME NEWS STORIES.

DAY 36

First of all, a very big thank you to all who have signed the Petition.

In the popularity stakes, we rank 175 out of 6425 petitions with 1,244 signatures. Don’t forget to make sure your name is there and pass the link on to all your family, friends and work mates. http://petitions.pm.gov.uk/Continuing-Care/ Closing date 20th August, 2007.

LATEST NEWS STORIES:

NORTHWICH GUARDIAN 2nd March, 2007.

'BLAIR IS ASKED TO SUPPORT ELDERLY'
By Staff reporter
http://www.northwichguardian.co.uk/most ... ly.php?s=s


NORTHWICH CHRONICLE 6th March, 2007.

'STROKE LEFT ROD PARALYSED DOWN ONE SIDE.... BUT HE IS NOT ELIGIBLE FOR NHS CARE'
By Dave Goodban, Northwich Chronicle
http://iccheshireonline.icnetwork.co.uk ... _page.html


NORTHWICH GUARDIAN 14th March, 2007. Page 2.

‘HUNDREDS BACK FIGHT TO HELP SICK AND ELDERLY’

Hundreds of people have already signed a petition calling on the Prime Ministerto fund long-term care for the sick and elderly.
Acton Bridge resident Stephen Johnson, of strawberry Lane, started the campaignon the Government’s number 10 website and within its first six days more than 200 people signed up.
More than 700 had backed the campaign at the time of going to press.
Rod, whose story has been followed by the Guardian, is now being cared for at Redwalls Nursing Home in Northwich but is funding his own care because authorities refuse to pay.
Under the current system the NHS will pay for long-term care if it is deemed medically necessary but if it is considered social care the costs are means tested.
You can also keep up with the latest developments on the Guardian’s website and add your own comments.
To sign the petition, see http://petitions.pm.gov.uk/Continuing-Care/


NORTHWICH GUARDIAN 14th March, 2007. Page 7.

‘CAMPAIGN FOR CARE INSPIRES READERS’

A man’s campaign to ensure that long term care of the elderly and sick is funded properly was the most read story on the Guardian’s website this week.
Stephen Johnson from Acton Bridge, is annoyed his brother Rod has to pay for his own treatment after suffering a massive stroke.
The top five stories were:

1. Blair is asked to support elderly.
2. Plane hunts for thief.
3. Burr defiant after loss.
4. The final must go on.
5. Team vows to target the vandals and dealers.


Kind Regards,

Stephen (Johnson).
6 WEEKS INTO THE PETITION.

First of all, a very big thank you to all who have signed the Petition.

At 5.45am today we rank number 156 out of 6,900 petitions in the popularity stakes with 1,411 signatures. Let's keep going. It is getting tougher as we move up the ladder. Numbers and friends of the cause are growing.

Don't forget to sign up and get your friends, family and colleagues to sign as well. All the family can do it as long as they have different email addresses.

http://petitions.pm.gov.uk/Continuing-Care/ Closing date 20th August, 2007.

Kind Regards,

Stephen (Johnson).