This study has tracked parent carers of sick or disabled children over a four-year period, and gives voice to their experiences, attitudes and aspirations in relation to combining paid employment and upaid caring.
Using the findings from two carers’ surveys in 2002 and 2004, and in-depth interviews with a sub-sample of 29 parent carers in 2005, the study sheds new light on the issues faced by this often neglected group. Most were of prime working age, with a lifetime of caring demands ahead. Many needed (and wanted) to work to support their families and to have an additional focus away from their caring role.
The challenges of combining work and care are particularly significant for parents of sick or disabled children, whose children require more and different parental support, often over a longer period
A report for Carers UK and Contact a Family from the Centre for Social Inclusion, Sheffield Hallam University By Bernadette Stiell, Lucy Shipton and Sue Yeandle November 2006